Parental Quality of Life: Caring for an Infant or Toddler with a Tracheostomy at Home

Rachel Joseph; Linda M Goodfellow; Lynn M Simko

doi:10.1891/0730-0832.33.2.86

Parental Quality of Life: Caring for an Infant or Toddler with a Tracheostomy at Home

Rachel Joseph
, Linda M Goodfellow
, Lynn M Simko

School of Nursing

Research output: Contribution to journal › Article › peer-review

Abstract

   Purpose:  To explore the relationships between stress, coping, duration of tracheostomy, and quality of life (QOL) of parental caregivers who care for a child with a tracheostomy at home.
 
   Design:  A cross-sectional correlational design was used to study parents who care for a child with a tracheostomy at home. Family Inventory of Life Events, Family Crisis Oriented Personal Evaluation Scale, and Psychological General Well-Being Index were used to measure stress, coping, and QOL, respectively. Data were collected using both online and paper-pencil format.
 
   Main Outcome Variable:  quality of life.
 
   Results:  Parents who care for their infants/toddlers with a tracheostomy at home were found to be in moderate distress. Mean age of the participants was 33 years (N = 71), and the average duration of the child’s tracheotomy was 18.22 (SD = 9.59) months. Multivariate analysis showed a significant inverse relationship between QOL and stress. QOL was significantly associated with coping,   B  = 19.91, β = .43,   p  <.001.

Original language	American English
Journal	Neonatal Network
Volume	33
Issue number	2
DOIs	https://doi.org/10.1891/0730-0832.33.2.86
State	Published - 2014

Keywords

Parental Caregivers
Quality of Life
QOL
Stress
Coping

Disciplines

Medicine and Health Sciences
Nursing

Access to Document

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Cite this

@article{64861b9dcc714d8f9d6bfdc045f9ab5b,

title = "Parental Quality of Life: Caring for an Infant or Toddler with a Tracheostomy at Home",

abstract = " Purpose: To explore the relationships between stress, coping, duration of tracheostomy, and quality of life (QOL) of parental caregivers who care for a child with a tracheostomy at home. Design: A cross-sectional correlational design was used to study parents who care for a child with a tracheostomy at home. Family Inventory of Life Events, Family Crisis Oriented Personal Evaluation Scale, and Psychological General Well-Being Index were used to measure stress, coping, and QOL, respectively. Data were collected using both online and paper-pencil format. Main Outcome Variable: quality of life. Results: Parents who care for their infants/toddlers with a tracheostomy at home were found to be in moderate distress. Mean age of the participants was 33 years (N = 71), and the average duration of the child{\textquoteright}s tracheotomy was 18.22 (SD = 9.59) months. Multivariate analysis showed a significant inverse relationship between QOL and stress. QOL was significantly associated with coping, B = 19.91, β = .43, p <.001.",

keywords = "Parental Caregivers, Quality of Life, QOL, Stress, Coping",

author = "Rachel Joseph and Goodfellow, \{Linda M\} and Simko, \{Lynn M\}",

note = "Purpose: To explore the relationships between stress, coping, duration of tracheostomy, and quality of life (QOL) of parental caregivers who care for a child with a tracheostomy at home.Design: A cross-sectional correlational design was used to study parents who care for a child with a tracheostomy at home.",

year = "2014",

doi = "10.1891/0730-0832.33.2.86",

language = "American English",

volume = "33",

journal = "Neonatal Network",

number = "2",

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TY - JOUR

T1 - Parental Quality of Life: Caring for an Infant or Toddler with a Tracheostomy at Home

AU - Joseph, Rachel

AU - Goodfellow, Linda M

AU - Simko, Lynn M

N1 - Purpose: To explore the relationships between stress, coping, duration of tracheostomy, and quality of life (QOL) of parental caregivers who care for a child with a tracheostomy at home.Design: A cross-sectional correlational design was used to study parents who care for a child with a tracheostomy at home.

PY - 2014

Y1 - 2014

N2 - Purpose: To explore the relationships between stress, coping, duration of tracheostomy, and quality of life (QOL) of parental caregivers who care for a child with a tracheostomy at home. Design: A cross-sectional correlational design was used to study parents who care for a child with a tracheostomy at home. Family Inventory of Life Events, Family Crisis Oriented Personal Evaluation Scale, and Psychological General Well-Being Index were used to measure stress, coping, and QOL, respectively. Data were collected using both online and paper-pencil format. Main Outcome Variable: quality of life. Results: Parents who care for their infants/toddlers with a tracheostomy at home were found to be in moderate distress. Mean age of the participants was 33 years (N = 71), and the average duration of the child’s tracheotomy was 18.22 (SD = 9.59) months. Multivariate analysis showed a significant inverse relationship between QOL and stress. QOL was significantly associated with coping, B = 19.91, β = .43, p <.001.

AB - Purpose: To explore the relationships between stress, coping, duration of tracheostomy, and quality of life (QOL) of parental caregivers who care for a child with a tracheostomy at home. Design: A cross-sectional correlational design was used to study parents who care for a child with a tracheostomy at home. Family Inventory of Life Events, Family Crisis Oriented Personal Evaluation Scale, and Psychological General Well-Being Index were used to measure stress, coping, and QOL, respectively. Data were collected using both online and paper-pencil format. Main Outcome Variable: quality of life. Results: Parents who care for their infants/toddlers with a tracheostomy at home were found to be in moderate distress. Mean age of the participants was 33 years (N = 71), and the average duration of the child’s tracheotomy was 18.22 (SD = 9.59) months. Multivariate analysis showed a significant inverse relationship between QOL and stress. QOL was significantly associated with coping, B = 19.91, β = .43, p <.001.

KW - Parental Caregivers

KW - Quality of Life

KW - QOL

KW - Stress

KW - Coping

UR - https://connect.springerpub.com/content/sgrnn/33/2/86

U2 - 10.1891/0730-0832.33.2.86

DO - 10.1891/0730-0832.33.2.86

M3 - Article

C2 - 24589900

VL - 33

JO - Neonatal Network

JF - Neonatal Network

IS - 2

ER -

Parental Quality of Life: Caring for an Infant or Toddler with a Tracheostomy at Home

Abstract

Keywords

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